Our key question
as we initiate a new millennium is "How do we live with one another?"
Inclusion is about learning to live with one another. Inclusion means
"being with." Inclusion means inclusion!
It means affiliation, combination, comprisal, enclosure, involvement,
surrounding. It means with . . . Inclusion means being with one another
and caring for one another. It means inviting parents, students, and
community members to be part of a new culture, a new reality. Inclusion
means joining with the new and exciting educational concepts (cooperative
education, adult education, whole language, computer technology ,
critical thinking). Inclusion means inviting those who have been left
out (in anyway) to come in, and asking them to help design new systems
that encourage every person to participate to the fullness of their
capacity as partners and as members.
Inclusion Means Welcome!
"I want to be included!" This simple statement is being spoken,
signed, facilitated, keyboarded, whispered, and shouted by people
of all ages, shapes, sizes, colors, and cultures. Many are making
the request for themselves while others are asking for their friends
or aging relatives. It is a simple request and the answer is equally
easy.
"Welcome! We want to include you. Come and be part of us and our
community."
Why does this humble proposal evoke such a strong reaction? Why
is welcoming people labelled "disabled" seen as an activity of the
"radical fringe?" Hospitality is not radical. Caring for our families
and friends is not radical. In fact, hospitality and caring are
foundations of our culture. So why the intense reaction about inclusion?
We believe that the Inclusion issue cuts directly to the core
of our values and beliefs. Inclusion seems so simple, so full of
common sense and yet it is complex. Inclusion sets off fire works
in the souls of those involved. Inclusion challenges our beliefs
about humanity and cuts deep into the recesses of our hearts.
Inclusion is not about placing a child with a disability in a
classroom or school. That is only a tiny piece of the puzzle. Rather,
inclusion is about how we deal with diversity, how we deal with
difference, how we deal (or avoid dealing) with our morality.
How else can we explain the emotions unleashed by the presence
of a tiny child in a wheelchair or the presence of a teenager with
down syndrome in a local school in Canada, the United States, Britain,
or Australia? Why do so many apparently "normal" adults lose their
composure with the mere mention of including an excluded child.
We conclude that the arrival of this person signals major change,
and for many, change is something to fear, something fraught with
danger.
However, in danger there is also opportunity for growth. Thus,
schools and communities, teachers and citizens, who face their own
fears and morality by welcoming all children instantly create the
climate for a new kind of growth. Inclusion becomes an opportunity
and a catalyst to build a better, more humane and democratic system.
Inclusion does not mean we are all the same. Inclusion does not
mean we all agree. Rather, inclusion celebrates our diversity and
differences with respect and gratitude. The greater our diversity,
the richer our capacity to create new versions. Inclusion is an
antidote to racism and sexism because it welcomes these differences,
and celebrates them as capacities rather than deficiencies. Inclusion
is a farce when it only means "white, bright, and middle class."
Inclusion means all together supporting one another.
A child or adult with a disability is a symbolic personal crucible
where we face our feelings about differences head on. Inclusion
is about how we tolerate people who look, act, or think differently
than so called "ordinary" people.
Our future depends on our capacity to learn to live together without
war, creating societies that build capacity with compassion for
one and for all. Inclusion is about rebuilding our hearts and giving
us the tools for the human race to survive as a global family. .
.
Inclusion! It's About Change!
Inclusion means change! We believe both inclusion and change is
inevitable. Whether we choose to grow with and from these changes
is a choice. It has been instructive to be a participant in hundreds
of emotional meetings about "inclusion," when it is crystal clear
after a few minutes that inclusion is only nominally the topic.
The real topic (seldom stated) is fear of change! Many people in
education and human services are afraid they will lose their jobs.
Afraid of new responsibilities. Afraid of what they don't understand.
Afraid of being accountable.
The words that come out are: "But, we don't have enough money!
But, we haven't been trained to take care of those! But, I didn't
choose special education! But, I don't have special curriculum guidelines,
and I don't have time to create a special program for 'them.' The
other children will suffer!" We all recognize the phrases. Listen
deeper. Most of the "buts" are about "me" and "I."
The buts that are couched in deprivation to the other children
reflect both ignorance of virtually everything we know (for centuries)
about cooperative learning and peer tutoring, and too often are
a guise to cover, "I don't want to risk giving up control." "I am
afraid that people might find out that I don't know everything!"
"I don't want to do this!" "I am afraid!"
This is the key phrase underneath most of the whining. But for
many, there are deeper fears that are teased out with great delicacy.
People are afraid of being "faced" with their own mortality, with
imperfection. People are afraid "they might catch it."
These deep seated fears are a product of our culture. It is not
the fault of individuals (teachers and human service workers) that
they are afraid. We were all taught to put "them" out of sight,
and as citizens and taxpayers we have. But, now we know that "putting
people away" is a decision just one step away from extermination.
The film, Schlindler's List, reminds us that segregation in any
ghetto is life threatening. The answer is that we must face the
fear and do it anyway (i.e., include everyone). This will be uncomfortable,
even terrifying for a few moments, but fears pass. When we face
our fears, and proceed regardless, they immediately diminish and
come into perspective. We have had conversations with hundreds of
"inclusion survivors". Teachers and human service workers were petrified.
They endured a few weeks of "Tylenol therapy" and then as if by
magic, the terror passed. In interviewing people about that period,
there is an overwhelming pattern. Every single person remembers
being terrified.
No one can remember what they were afraid of. . . just that they
were afraid and it passed. It usually takes about six weeks which
is the general pattern for any crisis situation to get back to normal.
There are lessons to be learned. All to often we tell people who
are being faced with change, "don't worry, don't be afraid." This
is nonsense! Inclusion is about change. Change is terrifying for
all of us. It's scary. It's unpredictable. But since the issue is
one of survival, about the human rights of individuals, we must
do it anyway. We do not have the right to exclude anyone. Our fears
are simply an obstacle to overcome. There cannot, and must not,
be a reason to deny any person their rights. A second learning is
that people need support to get through the crisis period of change.
The fascinating facts are however, that this has very little to
do with budgets. The key ingredient in effective support of change
is supportive relationships. What we need is to "practice random
kindness and senseless acts of beauty." A kind word, a thoughtful
gesture. It is knowing someone will be there when you need them.
The values will be clear, cooperation, not competition, participation,
not coercion, relationships, not isolation interdependence, not
independence, friendships, not loneliness.
The Need To Belong
Inclusion isn't a new program or something one "does" to or for
someone else. It is not a trendy product or fad to be discarded.
It is not a new label ("the inclusion kids"). It is not a bandwagon.
People are either included or excluded. One cannot be a little bit
pregnant or little bit included (like the myth of "inclusive" recess
or lunch time). One is either "in" or "out." One either belongs
or doesn't belong. If we exclude people, we are programming them
for the fight of their lives - to get in and to belong.
Most excluded people perceive that they have nothing to lose,
and everything to gain in the battle to belong. Many youth consider
it a matter of life and death. Teenagers join gangs because they
are desperate to belong,to have meaning. Even when the gangs are
a logical response to society's failure to make teenagers feel belonging.
When our youth literally die to belong, it is a searing warning
for us to look hard at the system in which we live.
Many suggest that with our society in crisis, we need to mount
the barricades and defend out turf. Typical responses include: hire
more police, build more jails, create more special education, administer
more electroshock, issue more behavior modifying drugs. Control,
control, control. There is another possibility. We could strive
to welcome and include everyone, to build a society with more acceptance,
more love, more caring, more compassion.
Our world has serious challenges. We must face them honestly,
analyze, learn from the past, then move forward. The need for change
is not negotiable. The only question is whether we run with it,
or be dragged kicking and screaming into the year 2000. Dealing
with change is like running white water rapids. It is dangerous,
but if you train and plan, it is the thrill of a life time. Change
is here. Our societies are white water chutes. There is no portage.
Out choices are limited, will we shriek with joy as we run the rapids
or will we just shrink?
Our world is rife with conflict. We must not deny it. Instead,
we must strengthen our capacity and learn to live with differences
and conflict while avoiding the tendency to slide into violence
as a solution. Conflict is legitimate. We can agree to disagree.
Resorting to violence is no longer viable. It will be our destruction.
With the advent of new technology, the critical issues of this
new revolution of compassion will be to learn how to live with one
another. If we are to survive, we will enter an era of "high touch"
and genuine personal communication. Who better to instruct us in
this new venture than those who have been excluded and rejected
in the past.
Teenage suicide, random violence, drive by shootings, and gangs
are simply the signals of a deep social malaise that won't be cured
by microwave thinking or slick packaged answers. We must think deeply.
We must make tough decisions and be willing to work hard. Inclusion
makes us think deeply about what we want our world to be. Who do
we want as neighbors? What do we want our communities, churches,
synagogues, mosques, and schools to look like?
We believe the communities of diversity are richer, better, and
more productive places in which to live and to learn. We believe
that inclusive communities have the capacity to create the future.
We want a better life for everyone. We want inclusion!
If we can pin point bomb cities halfway around the globe, and
send men and women into space, surely we can figure out how to live
together with "liberty and justice for all." Inclusion is truly
and simply a matter of will.
Our canter is committees to work with people anywhere and everywhere
to make this value a reality. Communities which reject the richness
of diversity, continue to put us all at risk-personally and internationally.
Forest, M. & Pearpoint, J. (web page) 1996, June; http://www.inclusion.com/
(Accessed June, 1996).